Skinny Jeans

It was my first time trying on skinny jeans and I was excited. My legs are stocky, inherited from my mom’s side of the family who were all strong Irish farmers. As a teenager I had yearned for my dad’s long, pole-style legs and had even asked my parents if I could get my legs stretched (I had read somewhere that a lengthening machine existed).

At forty-six years old I had long ago accepted by body, but when I slipped into a pair of size 24 skinny jeans and saw my legs looking strangely slim, suddenly my insecure teenage self reappeared and she was ecstatic. Yet the reason they looked slender was because I had lost weight due to cancer. I was newly diagnosed with Peritoneal Mesothelioma, a rare, incurable form of abdominal cancer and I was in denial. “I’ll take them,” I told the shopgirl. And though I’m ashamed to admit it, for the next few weeks I actually liked how I looked. How sick is that? Speaking of sick, during this same period I did not feel well: I had difficulty eating, major nausea and twice daily panic attacks where I felt like my throat was closing.

My cancer “de-bulking” surgery was eight hours long and included the removal of my reproductive organs, a section of my small intestine and my primary tumour which I had named Maude. It also included a treatment called HIPEC, which is essentially hot chemotherapy poured directly into the abdomen while the patient is still on the operating table, aka a chemo bath.

After several days in the ICU, I was moved to the step-down unit. It was there, ablaze with pain and high on narcotics, that I made a decision: I had suffered enough. I would run away from the hospital and fly to Oregon where I had read they had passed legislation that allowed patients to “die with dignity.” But such an escape would be impossible without my skinny jeans.

“I need my clothes,” I whispered in a raspy voice to my partner. Not wanting to upset me, but suspicious of my intentions, he retrieved my hospital bag and put it next to me on the bed. I pawed at it in a drugged-out frenzy, then passed out.

I awoke to a large tiger staring at me from across the room. And someone had brought their dog to work: “I can’t believe they let animals in the hospital!” I said to myself, horrified. My great escape would have to wait, the hospital needed me; I had to keep watch over the creatures infiltrating the building.

Also, I had a new friend whom I had become very attached to and I didn’t want to leave her. A nurse’s assistant had been placed in my room to guard me, since in my delusional state I had made several attempts to get out of bed (while attached to multiple tubes and monitors). Not understanding that she was there to keep an eye on my crazy self, I thought I had my own private nurse-friend and I adored her.

Due to a myriad of complications, I spent two months in two different hospitals. At the second one, a rehab hospital, the nurse weighed me: the scale read 94 pounds, I usually weigh 120. I had lost a great deal of muscle mass; my legs were emaciated, atrophied sticks and my bum was pancake-flat. I avoided looking at myself in the mirror, it was too upsetting. I begged God to help me gain back the weight, promising never to complain about my thick legs again.

In retrospect I think my early fixation on my legs was simply my way of avoiding the intense emotions that were surfacing. I was scared of dying, who wouldn’t be? But what really troubled me was the idea of hurting those I loved. I was blessed with a partner, family, friends and a one-eyed elderly street dog who all loved me. I didn’t want to cause them pain.

Now, two and a half years later, I am back up to 120 pounds and I’m as stocky as ever. I am extremely lucky to be alive, many people with Mesothelioma don’t live more than a year after diagnosis. And though I’m grateful, I’m also aware that I’m living on borrowed time. So now I wear skinny jeans as often as possible. It’s my way of giving cancer the middle finger.

 

 

 

 

 

 

 

Cake

Friday was my birthday, but I wasn’t in the mood to celebrate.  Earlier in the week I’d had to put down my beloved dog Leroy.  I felt like my heart had been ripped out, stomped on and then thrown back in my body.

Being so emotionally exhausted, I had totally forgotten that I had a brain scan scheduled. My Neurologist, a handsome Euro-Chic man who wears the most gorgeous Italian loafers, told me six months ago that if my aneurysm grew at all he would have to perform a procedure called “coiling” to keep it from bursting.

The funny thing is that when you already have a terminal illness and you’ve endured difficult treatments, finding out that you have a brain aneurysm really isn’t so bad. LOL. As long as the Neurologist didn’t have to open up my head during the procedure – and with coiling you don’t have to – then I was fine with it all.

But by Friday afternoon it all started feeling like it was just too much. Cancer + euthanizing my dog + brain aneurysm = bullsh*t!  So to celebrate the fact that my life was completely ridiculous, I bought myself a giant chocolate cake.  My partner does not eat sweets – how is that even possible?! – which meant more cake for me, yay!  One of the wonderful things about my partner is that he allows me and encourages me to just be myself.  He understood that I had to grieve the loss of Leroy and that I was in no mood for a typical birthday celebration.  So he let me binge watch “Nurse Jackie,” while I pounded back white wine and stuffed my face, toddler-style, with cake.

Saturday morning I woke up with cake smeared on my nightgown and mascara on my face.  I took all of Leroy’s stuff and threw it in our office/laundry room – the one room in the house which always looks like it has just been bombed.  Then I started obsessively cleaning the couch, vacuuming up every last Leroy hair that I could find.  I aired out the pillows on the deck, smashing the pillows against each other to rid them of Leroy’s beautiful brindle hair.  Beating up on the pillows felt cathartic and the tears started flowing. I cried for the loss of Leroy, whom I had loved fiercely and who had been by my side every minute of my recovery.  I cried because there was a very real chance that I would die before my parents and I couldn’t handle breaking their hearts.  And I cried thinking about leaving my partner behind and how one day he would probably be with another woman.

Crying felt so damn good, why didn’t I do it more often?  Why did I always try to control my emotional reactions?  I cut myself another piece of cake and sat outside on the deck, in the cold, surrounded by couch pillows and Leroy’s remaining hairs.  Crying + cake = just the kind of birthday celebration that I needed.

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