TWO WEEKS

Mural in Echo Park

The first day Emily slept until 3:00, walked to Sunset and bought an ice cream cone from Icy Rush. Back home, with caramel still glossing her lips, she flopped on her bed, not waking until 10:00 pm. After microwaving a frozen burrito, Emily watched reruns of “Keeping Up With The Kardashians,” the episodes where they still looked human.

Day Two Emily woke at 1:00, threw on old Levis cut-offs, a white tank, Birkenstocks and a vintage kimono. She Ubered over to Figaro Bistrot, (she didn’t trust herself to drive yet, the exhaustion was only just now beginning to seep out from her body). Sitting on the sidewalk patio, Emily ordered a glass of Sauvignon Blanc, a Croque Monsieur with frites and then settled in to people watch from behind her scratched Ray Bans.

“That’s an insane kimono. LOVE.” said the woman sitting next to her.

“Thanks, I love it too. It was a gift from a Costume Designer I worked for,” answered Emily as she stabbed frites with her fork.

The woman was on her way out and they waved goodbye.

“Thank God,” thought Emily, “I don’t have the energy for an actual conversation.” Before leaving the bistrot she bought several desserts to go, then got into a yellow Uber sedan.

“Hideous,” thought Emily. She despised yellow cars. Only vintage Volkswagen Bugs like the one Goldie Hawn drove in Foul Play should be yellow.

Once home Emily answered a bunch of texts and emails then grabbed the desserts and headed over to her neighbor Jim’s house. She actually had five neighbors: the six of them each lived in tiny one-bedroom casitas, sharing a main courtyard filled with aloe vera and jade succulents. Jim was a writer who had recently – finally – sold his first screenplay. Emily had been on location when she heard the exciting news, so she hadn’t been able to properly congratulate him and celebrate.

“Jim, you there? I come bearing sweets and a rad vintage Metallica t-shirt that I scored for you.”

Jim opened the door,

“Holy shit balls, you’re back!”

He grabbed forks for them and they settled on lounge chairs in the courtyard, passing the box of desserts back and forth.

“Jesus, these are delicious, thx Em. And I love my t-shirt, I think it might actually be a collectors item. Where did u find it?”

“Toronto. I was there shooting the new Lily Collins movie. It’s a cool city, but I barely made it through filming. I was so exhausted that my whole system went out of whack: I felt really depressed, no energy and I started getting anxiety attacks when eating. It was actually really scary.”

“Oh God Em, I’m sorry. You’ve been going from project to project, working ludicrous hours – it’s not sustainable. I’ve been worried about you.”

“Thanks, I appreciate that, I really do. My Doctor says I’m suffering from burn-out. She wants me to take a few months off, she’s writing me some kind of note. It’s ridiculous though, what am I going to do, give a doctor’s note to my wardrobe union? Plus, I’m due to start working on a new series in two weeks, it’s filming in LA thank God. But enough about my stupid health drama, I want to hear all about your screenplay selling, tell me everything!”

After her visit with Jim, Emily slept until 8:30. She had just enough time to grab a ride-share and bike over to the Vista Theatre where they were playing “The Maltese Falcon,” a classic which she’d never seen. Emily settled into a back row seat and ripped open her Red Vines, jamming a whole piece in her mouth.

It was an especially beautiful evening, so Emily decided to walk home even though she was tired. As she made her way east on Sunset towards Echo Park, she spied the cutest couple holding hands. They were dressed in a very i-D Magazine mash-up of 80’s preppy/70’s punk. She was tempted to speed up so she could eavesdrop on their conversation, but she was distracted by a well-dressed elderly couple drinking expresso at a rickety cafe table. She stopped for a moment to take a few sips from her water bottle, leaning against a mural-ed wall. On the street in front of her were two young blond women kissing. It felt as if their kisses were sending off little rays of love into the universe.

She was about to start walking again when she felt wobbly. Was it anxiety? Maybe she needed to call an Uber. She sat down beneath the Mi Familia mural and took a few deep breaths. But it didn’t feel like the anxiety she had recently experienced. What was it then? Why was she sitting on the dirty street like a homeless waif feeling wobbly?

Suddenly she felt like a character in a scene from a movie she might have worked on. As a wardrobe shopper Emily would have shopped her character’s whole look, from her floral underwear to the vintage kimono. It had always been Emily’s dream to work in the film industry. She loved storytelling and the role that clothing played in it. But when did Emily get to write her own story? When was there even time for her to live her own story?

Seeing the three couples – the hand-holders, the smartly-dressed seniors and the two blondes – had penetrated something within Emily. Something very fragile that she had been keeping buried within her, without even knowing she was, without even knowing what it was, had been punctured. She felt like she was bleeding out. Bleeding out invisibly on Sunset Boulevard – now there’s a screenplay idea for Jim.

She looked down on the grimy pavement, smeared with God knows what and realized she was not having an anxiety attack – she was having a loneliness attack. “But is that even a thing?” asked the rational side of Emily’s brain. “Can a person be so deeply lonely that their body manifests a physical reaction?” “Yes,” she said out loud, “Yes it can.”

Emily wondered if her Doctor would write her a second note:

Dear Wardrobe Union: Your highly esteemed member & wardrobe shopper Emily Jenkins, is suffering from a life threatening case of loneliness. As you probably know, but perhaps you don’t think about, as a wardrobe shopper Emily works primarily on her own. She spends her days in malls, boutiques and costume houses, with almost no opportunities to meet available straight men. I have written Emily a prescription which requires you to provide her with one hour a day of exposure to at least three men. These men must be emotionally mature, ready for a relationship and politically left-leaning. Thank You. Sincerely, Doctor Govindarajan.

Emily laughed at the idea of the letter, got up and continued walking home. She’d forgotten how long a walk it was, but she needed – as Taylor Swift said – to shake it off. So she walked and walked and walked. Tears started falling and she let them do their thing, not wiping them away. Soon she started sniffling and within a few minutes she was full on sobbing, the ugly variety, with snot and tears mixing together, forming a kind of sadness facial.

“Senorita, estas bien?” asked an older woman.

“Si, yo soy bien, gracias,” answered Emily in her best Spanish.

“God, I must look like a woman having a nervous breakdown,” she thought.

Emily broke out into a slow jog, not ideal in Birkenstocks, until she made it home. Inside she quickly locked the door, as if she could keep additional loneliness from entering if she locked it fast enough.

She considered taking a shower since she was sweaty, snotty and tear-stained, but then decided against it. “Fuck it,” she thought, “let’s see if this snotty, tear-stained sadness facial makes my skin all glow-y in the morning. You never know.” She took off her clothes, letting them drop on the floor, got under her favorite linen sheets and was asleep within a minute.

And in the morning Emily’s skin was glow-y. She was lonely, but radiant as hell.

Finding Urethra

“Let’s have you pee in a bed pan today!” My nurse exclaimed with an air of excitement, like we were about to go see our favorite band.

I had been in the hospital for almost four weeks, (to treat Peritoneal Mesothelioma, a rare cancer), peeing through a catheter the entire time. I was game to try going on my own, but I was weak and wasn’t sure I would have the strength to pull myself up on the bed. My nurse took out my catheter then helped me into an awkward position, crouched above a cardboard pan.

The pan looked like a larger version of those biodegradable herb pots, with my vulva like an alien spacecraft hovering above the brown pebbled earth.

“I’ll give you some privacy,” said my nurse, leaving the room.

I looked out the window at the falling snow. No urine was exiting my body. “I command you to pee!” I said in a theatrical voice to an empty room. Nada. Not a drop. I was sweating and wanted to lie down, the position required too much strength to hold.

The succulent-crystal gurus say, “Ask The Universe – with love and gratitude – for what you need. Then visualize having what you need – and poof! – you will manifest it.” So I asked the universe to help me pee, in what I hoped was a loving and grateful manner. Then I visualized a long river-like flow of urine exiting my body – swoosh! I paused, ears tilted, in full manifestation mode. Nothing. Maybe the universe was busy helping people with more serious problems, like those living in war torn countries. I couldn’t blame the universe, I’d do the same thing if I had magical powers & everyone was hounding me for help.

I was sure I was due for another blast of Hydromorphone. After two surgeries and HIPEC, (hot chemo poured in the abdomen and swished around), I was ablaze with pain. I buzzed the nurse’s station:

“Hi. I can’t pee. Nothing is coming out. Also, I think I’m due for more painkillers.” My nurse responded, “be patient, keep trying, it’ll come. And no, you’re not due for more pain meds yet.”

I stared gloomily at my crotch. “I know you’re in there, come out come out wherever you are!” Still nothing. I tried reaching for my water cup and fell into the pan.

My nurse appeared, “don’t worry sweetie, your bladder is just waking up from a long sleep, we’ll try again tomorrow.”

She helped me lie down and inserted a new catheter and we chatted about her weekend plans. I loved my nurse, I loved all of my nurses – they were like athletic shoe-wearing angels tending to me with care and quiet confidence.

“I’ll see about your pain meds” she said, as she handed me a damp towel for my sweating brow.

After five weeks in the hospital – and no peeing on my own – I was transferred to a Rehab Hospital to work on regaining strength, gaining weight and learning to walk again. My left femoral nerve had conked out during surgery, (from being splayed out for so long on the operating table) and I had awoken to find that I couldn’t move my leg.

The nurses at the rehab hospital were hardcore, they were like the Marine Corp of Nurses. They immediately took out my catheter and started “bladder training.” They seemed confident that I would be peeing in no time.

I was instructed to try peeing on my own every two hours. I would slowly make my way over to the bathroom using my walker, trying my best to avoid looking at my emaciated body in the mirror. Sitting on the toilet with the sink water running, I would wait five minutes, then get up and do my haunted girl shuffle back to bed.

Bladder training required waiting six hours before being allowed to have a catheter inserted to void the urine. In between physiotherapy, sleeping and doing my laps around the floor, my bladder would fill up to the brim; it was horrible. At this point I was no longer on pain meds, but I would often sneak a Xanax from my private stash just so that I didn’t completely lose it.

The nurses were required to scan my bladder to see how much urine I was retaining before they were allowed to insert a catheter to drain me. A catheter, in this case a long rubbery one which looked like a hose, was lubed up then inserted into my urethra. The urine would then drain out into the brown organic pan – it was called doing an “in and out.”

Then came the day when one of my favorite nurses dropped a bomb: “you’ll be going home very soon and your bladder nerves are still not working. So today I’m going to start teaching you how to do your own in and outs.” Dear God, have mercy on me please.

Thus began a brief chapter in my life called “Finding Urethra.” Because if you want to drain your urine, you first need to find the hole that it comes out of. And by hole, I mean a really tiny, almost imperceptible slit that is kind of hidden by the rest of the female bits. Maybe I’m in the minority or I missed a crucial health class back in high school, but I honestly didn’t really understand where the urethra was. So I used a mirror to watch the nurse and at night, under my blankets, I examined myself by the light of my cellphone.

I had an irrational fear of doing the procedure on my own. It’s like all my anxiety about having cancer was projected onto this one procedure and I couldn’t imagine that I would ever master the skill. I envisioned myself at home, swollen like a balloon with unreleased urine, until one day I just exploded, spraying pee everywhere.

But like anything in life, when your back is against the wall and you have no other options, you figure things out. One day, having finally located my elusive urethra, I successfully performed my own in and out! I basked in the glory of the moment, telling everyone on my floor my good news. I celebrated by eating an extra cup of ice cream (side note: the little hospital ice cream cups are, unlike all other hospital food, strangely delicious).

A few days later I was discharged from the hospital with a supply of tiny, clear catheters, lube, a giant splint on my leg, a walker, crutches and a cane. It would be six more months until my bladder woke up. Then, one day, while sitting on the toilet, I suddenly heard a beautiful noise – the swoosh of urine! The universe had finally granted me my wish.

Author’s Note:
My bladder nerves only partially woke up; I still have to self-catheterize twice a day. This is what the little catheters, aka, pee sticks, look like:

Teatime

Today I’m trying CBD tea for the first time. I’m hoping it will help my anxiety, which recently has taken possession of my stomach, making it difficult to eat (though I wouldn’t say “no” to a cookie right now). Now that I think of it, I think this little packet of CBD tea, (which I ordered from the Ontario Government), should come packaged with two shortbread cookies. Perhaps the cookies could be in the shape of pills – how fun would that be?!

Like most, (or perhaps all), CBD products, this tea has a tiny amount of THC, 1%. Now to most people I know, 1% of THC would be laughable, it wouldn’t even count. But I’m one of the those THC-sensitive types, it tends to make me paranoid instead of mellow. So let’s see how this experiment goes…I don’t want to end up in the ER again like the time I took too many bites of a pot cookie. 😬

photo from the website envisioningtheamericandream.com

#cbd #edibles #anxiety

The Crazy Room

This morning as I was tidying up, I briefly entered our laundry room/office which is our “crazy room.” I think most of us have one of these, or the equivalent – a crazy closet, drawer or cupboard. It’s the place where everything you don’t want to deal with goes to die. And I found myself thinking that the crazy room is very similar to that space in our psyche where we dump all of our emotional crap that we can’t deal with at the moment.

I keep telling my partner, “we need to deal with that room, it’s out of control.” And it’s true, it is out of control. For someone like me, who likes keeping the house clean and organized, the room makes me anxious. But the crazy room is actually more representative of my true emotional state than the rest of the tidy house. The crazy room has unopened boxes, piles of cords and computer stuff, unfolded clean sheets, my partner’s plaid shirts hanging from an IKEA shelf like little headless Grunge creatures, a dead plant, my ileostomy supplies (thank you cancer), a giant box of small catheter tubes (again, thank you cancer) and various other randomness.

And just like I side-step and avoid the issues that I don’t want to deal with, I also breeze right past the dead plant – sitting on the floor – to put in a load of laundry. Why not just pick up the plant and put it out in the green bin? That is what an emotionally healthy person would do, I think to myself as I breeze out of the room again. But somehow that damn dead plant and the rest of the crazy room has come to symbolize all the ways in which I am emotionally stuck, frozen, paralyzed.

I am extremely lucky in that I can afford to see a therapist, it’s a luxury many needy people don’t have. So in a sense I have an ’emotional cleaning lady’ who helps me clean up my personal crazy room twice a month. And yet, somehow, it seems no matter how hard I try, my crazy room never gets completely cleaned. Just as my cleaning lady and I finish cleaning one area of the room, another area beckons for attention. Its boxes need unpacking, its cords need untangling and its damn plant needs to be thrown out!

 

Branding Queens

Is it just me, or does it feel like we are all starting to Brand Ourselves?  Through social media we each curate our lives and reveal in mostly filtered perfection, (or sometimes purposely non-filtered perfection), images and witty sound bites creating in essence our own brand.  The Brand of Me.  I am part of this trend too, I post regularly on Instagram: there is Mary Ellen the Pit Bull Advocate, Mary Ellen the Living with Cancer Through Humour Gal, Mary Ellen the Vintage Loving Stylehoader.  Is this a bad thing?  I don’t know, but it does make me a bit uncomfortable.

It used to be that creating a brand was done primarily by companies in order to sell a product.  To this day fashion retailers continue to be focused on creating a desirable brand in order to make money: “Understated elegance for the woman who knows true luxury.” “Affordable classics with a twist!” “The only watch for the man who works hard and plays hard.”  But now that we are all self-branding, are we in some strange way selling ourselves?  And to whom and for what reason?  Many successful fashion & lifestyle social media wizards are actually selling items, often through sponsored ads, so that makes sense.  But what the hell are the rest of us doing?  I realize I am probably just overthinking all of this, but it still kind of freaks me out.

The other issue with everyone becoming a Branding Queen (or King), is that – at least for me – it can lead to increased depression & anxiety.  If I see one more perfectly decorated home with that damn fury IKEA bear rug thrown casually but not casually over a mid-century chair I am going to stab my eye balls out!  Or another reclaimed wood dining-room table, sparkling with glitter and pastel food and champagne bubbling over in mis-matched but perfect vintage glasses with an incredible floral arrangement in a milk jug bought for just $2 at a garage sale!  I can’t take it!  This past weekend I actually suffered from a bout of “Insta-Madness:” I went to my favorite Leslieville bakery – Sweet Bliss – and bought myself three delicious treats (luckily for me my partner is Paleo, so I get all the sweets to myself!)  Upon arriving home and admiring my goodies in their low-key unadorned box, I found myself thinking that they would look much prettier “styled” on a vintage floral China plate.  OMG!  What has happened to me?!  Thankfully I am not THAT insane and I happily enjoyed my sweets on a regular, almost ugly plate.  And they were damn tasty!

I guess for now I will just cut back a little on social media so that I can remain sane-ish.  But then again, I did just buy my dog a new bandana, so I might have to Instagram that as part of my “I’m a Pit Bull Advocate” Brand.  #stopthemadness